Chaos
(Originally published in The Ramblings of a Condemned Man, NEVER STOP NEVER QUIT, 2018)
I wrote this piece as a preface to try to explain my logic behind the
ramblings I have included in this book. Chaos is not a perfect word choice,
but it is the best explanation I can supply when I address the inevitable
question, “What were you thinking?”
My life is and always has been rife with chaos. Some of the turmoil has
been inflicted on me; I am merely a victim. Other times, I’ve been guilty of
instigating disarray. There were joint efforts as well, both inflicted and
self-instigated. And, of course, chaos is often a simple fact of nature. As
to the correct proportions of responsibility, I don’t know, although
prudence would split most of the blame between nature and me.
I don’t believe my body experiences a greater share of discord as compared
to others. My mind finds it challenging to see beyond chaos, many times to
the detriment of the peace and beauty around me. Looking back on my life,
the images that most readily come to mind are indeed the chaotic, the
horrific, and the burdensome. Many great recollections are there, they just
play second fiddle to the demons.
In and of itself, confronting chaos isn’t bad. You can realize a tremendous
amount of satisfaction by solving impossible challenges, overcoming
overwhelming odds, or righting the wrongs around you; it is the calling of
every superhero. But, when or where does it end? At what point will our hero
look beyond today’s villain, stop reminiscing over yesterday’s evil, and
forgo anticipation of tomorrow’s plight?
It must be nice, taking off the cape to enjoy the day’s treasures.
Unfortunately, this freedom is not afforded to condemned men; my sentence is
the recurring vision of chaos. The reality of my MS further antagonizes the
turmoil that is already deep inside me. I watch the incessant thrashing my
body has undertaken since 1999, when I was first diagnosed. “What’s next?”
rattles through my mind with its own dedicated line to every emotion and
fear I possess. I am indeed a condemned man, but not for the reasons you
might assume. The chaos of my MS falls mostly in the last category: it’s a
simple fact of nature. I’m not a victim of my disease, it’s just another
obstacle in life. One powerful difference about the chaos of this disease is
the answer to my question, “When does it end?”
It doesn’t.
Writing has become my way of loosening the shackles that chaos inflicts on
my mind and body every day of my life. I first started writing stories meant
only for my daughter, for her to read when she ultimately receives my
journals, when they become hers. In these journals (okay, fine…it’s a
diary), I share my thoughts, hopes, and dreams about life so that someday,
Ellie will have a vivid picture of the man her daddy was.
In 2010, writing became my response to the increasing levels of chaos
caused by MS. The blogs I write are my attempt to express the hope that
someday there will be an answer to “When does it end?” One piece in this
book is appropriately titled
The Completely Inconsequential Ramblings of a Condemned Man. It is
adapted from a series of blog posts I wrote documenting the damage multiple
sclerosis has done and will continue to inflict on me. By confronting the
chaos, bearing everything to my readers through the blog, I have been able
to raise funds and awareness in our fight against MS.
More importantly, the more I wrote about the chaos of my multiple sclerosis
and shared it with others, the more my own fears lessened.
If writing helped me cope with my MS, why not try writing about other
aspects of my life?
In 2014, I wrote the novella …in abeyance. The main character, Chris
Baxter, is the personification of chaos I have carried for far too long.
Chris is who I am, was, wanted to be, feared, struggled to overcome, and so
much more, wrapped up and scripted into an entirely fictional persona who
lives in a fictional world. Placing turmoil on the shoulders of this
character relaxed the burden on my own.
My revelation was like kicking over an anthill! I wrote stories overflowing
with the anxiety of my own unrest. Sometimes an entire saga addressed just
one particular struggle I faced. My favorites are those based on the utter
confusion in my head that I just can’t quite accurately describe; the
alternate fantasy world became a surrogate for the chaos I was unable to
express otherwise.
Regardless of why I wrote these stories, sharing my chaos this way has
helped me sleep a bit better. Maybe it discounts my fears. Maybe it
validates them. However, it is my hope that the therapeutic value I get from
writing pales in comparison to the enjoyment you will get from reading my
tales. Time will tell.
After my most recent struggles with multiple sclerosis and personal chaos,
a harsh campaign lasting nearly two years, I gathered some of my favorite
stories and sent them to my editor. They are some of the words I wrote or
revisited to help battle my own chaos. In addition to
The Completely Inconsequential Ramblings of a Condemned Man and
…in abeyance, I have included four short stories. My writings are
indeed ramblings because I sometimes feel as if I have little control over
what happens in the story.
I am merely a conduit.
Kevin
May 2018
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