Sunday, May 23, 2021

Reconstructing and Defining Kevin, Part 11: The Answer

Part 11: The Answer

 

My inside voice and I have decided these efforts are an exercise in futility.

I am frustrated by the challenges faced when articulating my experience. The answer is to focus on wellness – cultivating your capacity to monitor and ultimately regulate positive-fashion responses in eight unique dimensions of existence. Is there any need to drag my story on through additional pages? Here is my final presentation at the pulpit.

My life has been a whirlwind of highs and lows, peppered with experiences that served as fodder for my blogs, stories, and books. More will follow this rant, as my tales of fantasy will continue to fill written pages. Writing is the outlet for my expression I have grown to prefer over rage, vices, depression, and isolation.

The challenges I experience in my life or not unique. Many people deal with adversities greater than mine. In this aspect, I have no reason to complain. I have been, and continued to remain, quite fortunate in my lifetime.

I did not want to guide anyone down the path of any “I have healed/cured myself” mindset. Any such implication is far from true.

  • I have multiple sclerosis. I will always have multiple sclerosis. Though I manage the symptoms well right now, my disabilities are significant. They will worsen over time. Every effort I make in support of my fight against this disease is to ensure the next generation will not have to suffer the words, “You Have MS.”
  • Challenges to my wellness will resurface. I don’t know when, but physical, mental, and emotional pressures are inevitable in life. My awareness of their presence will ultimately be my saving grace.
  • My body and my mind will falter. Beyond that one absolute, every point is debatable: outlet, timing, duration, even my response. I can do nothing more but Pray for the Best, Anticipate the Worst, and Be Prepared for Both.

 

[So, does this mean I can stop pretending to be your partner in this exercise and go back to my role as your inside voice?]

Yes, it does.

[Should I give the spoiler alert, or would you like the others?]

I’ll do it.

 

SPOILER ALERT: this story is not over. I drafted this portion on January 15. That was before…

***

The developing draft of my story will be shared on this secure drive location: https://drive.google.com/drive/folders/1E4cNpkFBU4qf3zYDIqZ5Nw72DzhGe88r?usp=sharing

 

These are the thoughts going through my mind as I try to piece it all together…

This is not about what my life will be like when the fight is over.

I will never stop

I will never quit

This is my story

 

https://mssociety.donordrive.com/participant/Eleanor

100% of the royalties earned from my books go to the National MS Society, to support our fight: http://neverstopneverquit.com/books

 

Never Stop… Never Quit…®

Kevin Byrne

Portland, OR

www.neverstopneverquit.com

www.neverstopneverquit.blogspot.com

Never Stop… Never Quit… Reg. U.S. Pat. & Tm. Off.


Saturday, May 22, 2021

Reconstructing and Defining Kevin, Part Ten: Finding, Forming, and Understanding

 

Part Ten: Finding, Forming, and Understanding

 

Kevin’s wellness, or how he feels, is a complex conglomeration of perception and reality. Aware or not, he has authority over many of his physical responses. However, there will always be some he does not control. Kevin may not have the tools with the understanding needed to elicit a positive response. There may be no way for him to apply the necessary treatment. If direct action and a positive mindset alone will not advance Kevin’s wellness, external intervention may become necessary. There are countless reasons why he will need support in each dimension of wellness. A straightforward example from each would be:

  • Physical Dimension – his doctors
  • Intellectual Dimension – his teachers
  • Emotional Dimension – his family
  • Social Dimension – his girlfriend
  • Spiritual Dimension – his priest
  • Vocational Dimension – his fellow nonprofit board members
  • Financial Dimension – his financial advisor
  • Environmental Dimension – his friends who better follow environmentally conscious practices

Kevin uses a decision matrix, of sorts, as a guide to help identify when and how he needs assistance. “I like to think of myself as a disciplined and organized person,” he explains. “Life is more comfortable when I can look at it in a mathematical, yes/no, on/off sense. I have always been wired that way. It’s great to look at yourself as a logical and rational individual, organized to the point where decisions are obvious. Unfortunately, my brain often wonders from the expectation to follow the patterns my mind finds acceptable.

“It is absolutely torturous to struggle with emotional and artistic distress in a life where decisions should be objective and absolute. Is this just the way I was brought up? Perhaps it’s a chemical imbalance of sorts? Maybe a combination of those two, plus more?

“Whatever the formula, I see this as a Byrne-family curse. It killed my father and nearly destroyed me. I will set more significant priorities aside to compulsively follow a pattern/routine, sometimes long after the results have ceased to produce any benefit. I will also take a healthy, constructive lifestyle choice and abandoned it in a moment of rage, boredom, or passion (take your pick). I’m a disciplined and organized person right up until I am not.”

The prices he paid for some of those shortcomings were significant.

“When I sat down to write my explanation of a wellness assessment, I had no idea this realization would be my explanation.”

***

The developing draft of my story will be shared on this secure drive location: https://drive.google.com/drive/folders/1E4cNpkFBU4qf3zYDIqZ5Nw72DzhGe88r?usp=sharing

 

These are the thoughts going through my mind as I try to piece it all together…

This is not about what my life will be like when the fight is over.

I will never stop

I will never quit

This is my story

 

https://mssociety.donordrive.com/participant/Eleanor

100% of the royalties earned from my books go to the National MS Society, to support our fight: http://neverstopneverquit.com/books

 

Never Stop… Never Quit…®

Kevin Byrne

Portland, OR

www.neverstopneverquit.com

www.neverstopneverquit.blogspot.com

Never Stop… Never Quit… Reg. U.S. Pat. & Tm. Off.

Monday, May 17, 2021

Reconstructing and Defining Kevin, Part 09 Defined by History

Part Nine: Defined by History

History is the central factor in determining one’s capacity for wellness. From a biological-chemical standpoint to the mental-emotional experiences encountered since birth, the complex timeline of one person’s development governs future responses to external factors in every instance of life. Intentional, subconscious, or involuntary actions taken by one’s body (responses) determine its condition when faced with every succeeding moment. Physical actions produce physical reactions (responses). Mental and emotional actions also produce physical responses. We can categorize physical responses a body may experience as:

  • intentional, conscious actions.
  • subconscious, unintentional, or unrealized actions (habits, tics, etc.).
  • stress, strains, outbreaks, shutdowns, and other involuntary physical reactions.

The mental health industry applies needed attention to the mind in order to protect and preserve the body. Attention to the mind, heart, and soul aims to safeguard and care for the host body.

Wellness measures an individual’s capacity to monitor, and ultimately regulate in a positive fashion, their responses in each dimension of existence.

Kevin has multiple sclerosis. We will leave the medical discussions of onset, diagnosis, progression, and treatment of the disease to another forum.

Kevin has multiple sclerosis. Because of the disease, he experiences a constant range of debilitating symptoms relating to the loss or degradation of functions controlled by the central nervous system (involuntary physical reactions). There are countless actions his muscles can no longer perform; others Kevin is gradually losing the ability to control or are becoming increasingly difficult. His intentional choices range from his physical/medical care and treatment to the personal restrictions he places on himself and others because of the disease. Subconscious measures range from the sometimes-tedious steps taken while performing activities, even when he is not fully aware of his caution, to some of his most self-destructive episodes, fueled by the anger of his loss.

Kevin has multiple sclerosis. His disease will affect every dimension of his wellness moving forward. Sometimes, the impact will be significant. On other occasions, it will merely be a factor.

Kevin has multiple sclerosis. He ultimately chooses his course of recognition, coping, satisfaction, and eventually his response to the disease.

In regard to wellness, Kevin owns the response these historical facts he encounters today (May 17, 2001):

  • he has multiple sclerosis.
  • he is 49 years old.
  • he has an 11-year-old daughter and put together exciting plans for when she’s back with him on Wednesday.
  • he weighed 173.0 pounds this morning (up 5.6 since April 20).
  • he chose to not work out today, felt guilty, then put in a short sprint on his trike. It was his best 5-mile time of the year.
  • he grinned from the memories of a fantastic evening with his girlfriend and is looking forward to tonight.
  • his past financial decisions, pending obligations, and future earnings
  • his relationship with family.
  • his relationship with friends.
  • his relationship with God.
  • the value or insignificance of every reported news event.
  • the memories of his father’s suicide.
  • his private foundation.
  • his writings.
  • his alumni association.
  • he drank 48 ounces of coffee this morning and just brewed another.
  • every single event in his past and those that will ultimately touch his life today, and all succeeding tomorrows.

Some are random; some are constantly present in his life. Other events make today an incredibly unique, albeit ordinary, day.

He controls his intentional responses. His awareness can help shape his unintentional actions. He will have to deal with the consequences of all his body’s involuntary actions. Kevin Byrne equally owns them all.

Kevin’s history does not shape his wellness. His ability to capture and balance responses to each dimension of existence is the sole factor determining his capacity for wellness. It will never be simply a matter of “thinking everything is okay” for Kevin to fill that capacity with positive energy, in turn creating marked improvements physically, mentally, and emotionally.

In the rest of the story, we will explore Kevin’s journey from October 6, 2019, and beyond. We will talk about his responses to his 49 years of history (and counting). He neither discovered nor are we trying to share a definitive Secret to Wellness. We hope that his story will provide comfort to some, inspire others on their journey, or simply entertain readers with stories of a man building a string of positive moments without the need to legitimize his success with the phrase, “despite…”

We may startle some on occasion with our interpretation of “improvements.” The benefits gained from Kevin’s energy are not isolated to his mindset but also physical performance and medical evaluation. We will review a holistic concept by sharing his relationship with doctors, therapists, trainers, guides, family, friends, and deep self-reflection.

While drafting this chapter, Kevin was asked, “you mentioned physically, mentally, emotionally, but what about spiritually?” For the time being, I documented the spiritual aspect of his story bundled somewhere between mental and emotional. Kevin was not prepared to dive into that part of his life just yet, not out of fear but rather a self-described inability to articulate the journey. I will nudge him when appropriate, hopefully expanding that concept at a later point in this book.

 

Dimensions of Wellness (8)

Physical Dimension

  • Caring for your body to stay healthy now and in the future

Intellectual Dimension

  • Growing intellectually, maintaining curiosity about all there is to learn, valuing lifelong learning, and responding positively to intellectual challenges
  • Expanding knowledge and skills while discovering the potential for sharing your gifts with others

Emotional Dimension

  • Understanding and respecting your feelings, values, and attitudes
  • Appreciating the feelings of others
  • Managing your emotions in a constructive way
  • Feeling positive and enthusiastic about your life

Social Dimension

  • Maintaining healthy relationships, enjoying being with others, developing friendships and intimate relations, caring about others, and letting others care about you
  • Contributing to your community

Spiritual Dimension

  • Finding purpose, value, and meaning in your life with or without organized religion
  • Participating in activities that are consistent with your beliefs and values

Vocational Dimension

  • Preparing for and participating in work that provides personal satisfaction and life enrichment that is consistent with your values, goals, and lifestyle
  • Contributing your unique gifts, skills, and talents to work that is personally meaningful and rewarding

Financial Dimension

  • Managing your resources to live within your means, making informed financial decisions and investments, setting realistic goals, and preparing for short-term and long-term needs or emergencies
  • Being aware that everyone’s financial values, needs, and circumstances are unique

Environmental Dimension

  • Understanding how your social, natural, and built environments affect your health and well-being
  • Being aware of the unstable state of the earth and the effects of your daily habits on the physical environment
  • Demonstrating commitment to a healthy planet

 

(8) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5508938/

***

The developing draft of my story will be shared on this secure drive location: https://drive.google.com/drive/folders/1E4cNpkFBU4qf3zYDIqZ5Nw72DzhGe88r?usp=sharing

 

These are the thoughts going through my mind as I try to piece it all together…

This is not about what my life will be like when the fight is over.

I will never stop

I will never quit

This is my story

 

https://mssociety.donordrive.com/participant/Eleanor

100% of the royalties earned from my books go to the National MS Society, to support our fight: http://neverstopneverquit.com/books

 

Never Stop… Never Quit…®

Kevin Byrne

Portland, OR

www.neverstopneverquit.com

www.neverstopneverquit.blogspot.com

Never Stop… Never Quit… Reg. U.S. Pat. & Tm. Off. 

Saturday, May 8, 2021

Reconstructing and Defining Kevin Part Eight: What Is Wellness and Where Do I Get Some?

Part Eight: What Is Wellness and Where Do I Get Some?

 

wellness, noun 

the state of being healthy, especially when it is something that you actively try to achieve (3)

 

Before going down the rabbit hole of what it means to be healthy [healthy - strong and well (4); well – in a good way (5); etc.], Kevin chose to stick with a more impressionistic understanding of wellness.

“It’s more the concept of how I feel. Since I live with a debilitating illness, the accusation of healthy can inflame a conversation. ‘But you look healthy,’ often leads to reactions like, ‘Why don’t you do more,’ or, ‘It must be all in your mind.’ I have had those conversations many times. Often, my impression is an overreaction. Other times, the jab was intended just as I received it. I don’t like to worry about the intent, so I avoid the term whenever possible.”

Kevin likes wellness. It describes how he can feel great given everything going on in his life. It is subjective, so when considering wellness, “things” can be good. They can also get better or worse, by a little or a lot. Small words oversimplifying complex factors are often the best descriptions of how he feels.

The pursuit of wellness is often relegated to association solely with alternative medical treatments versus traditional mainstream therapies. A small administration under the US Department of Health and Human Services houses many discussions on Dimensions of Wellness at the federal level. SAMHSA (Substance Abuse and Mental Health Services Administration) was a significant first step. Their presentation, CREATING A HEALTHIER LIFE: A STEP-BY-STEP GUIDE TO WELLNESS (6), provided a near-perfect representation of what Kevin was looking for with his initial search to “feel better.”



“I have one issue,” he explains. “I agree with almost everything and can relate to the in-depth descriptions of each dimension. I spend quite a bit of time on nonprofit and philanthropic endeavors, but technically I am on disability and do not have a job. The term OCCUPATIONAL doesn’t sit well with me. They describe it as ‘getting personal satisfaction and enrichment from one’s work and hobbies.’ I don’t consider what I do to be work, nor is it merely 1a hobby.

“I bookmarked the site and kept on searching. That’s when I found Dr. Debbie Stoewen’s article on Dimensions of Wellness. She focused on the same eight mutually interdependent dimensions, with one exception, replacing VOCATIONAL for OCCUPATIONAL. The two articles combined describe my search.”

Dr. Stoewen defines the Vocational Dimension as:

  • Preparing for and participating in work that provides personal satisfaction and life enrichment that is consistent with your values, goals, and lifestyle
  • Contributing your unique gifts, skills, and talents to work that is personally meaningful and rewarding (7)

To Kevin, the term was a better description of his situation. He felt less of a need to clarify the word. We will merge the two descriptions of all eight dimensions into our own working model for the rest of our discussion.

We have two publications holding equal value in our discussion of Dimensions of Wellness. The first was published by the Substance Abuse and Mental Health Services Administration. The second article, though housed in the US National Library of Medicine, National Institutes Of Health, was first published by The Canadian Veterinary Journal. Dr. Stoewen is the Care & Empathy Officer and Director of Veterinary Services for Pets Plus Us, Oakville, Ontario. She is a licensed veterinarian and registered social worker with a special interest in “the social side” of veterinary medicine.  Both Kevin and I are grateful for this bounty of information and hope these concepts will be increasingly shared throughout every medicine channel.

 

(3) https://dictionary.cambridge.org/us/dictionary/english/wellness

(4) https://dictionary.cambridge.org/us/dictionary/english/healthy

(5) https://dictionary.cambridge.org/us/dictionary/english/well

(6) https://store.samhsa.gov/sites/default/files/d7/priv/sma16-4958.pdf

(7) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5508938/

***

The developing draft of my story will be shared on this secure drive location: https://drive.google.com/drive/folders/1E4cNpkFBU4qf3zYDIqZ5Nw72DzhGe88r?usp=sharing

 

These are the thoughts going through my mind as I try to piece it all together…

This is not about what my life will be like when the fight is over.

I will never stop

I will never quit

This is my story

 

https://mssociety.donordrive.com/participant/Eleanor

100% of the royalties earned from my books go to the National MS Society, to support our fight: http://neverstopneverquit.com/books

 

Never Stop… Never Quit…®

Kevin Byrne

Portland, OR

www.neverstopneverquit.com

www.neverstopneverquit.blogspot.com

Never Stop… Never Quit… Reg. U.S. Pat. & Tm. Off.