Monday, November 11, 2024

Episode 00 – Thinking out Loud

How to Thrive with this Disability

Episode 00 – Thinking out Loud

Watch my video: https://youtu.be/a83O_Nym99Q

Think of a time when you were doing one of the thousands of mundane tasks that get you through the day. Walking to check the mail. Writing an email. How about just getting out of bed in the middle of the night to go to the bathroom? Performing these tasks can be so routine that half the time you’re probably thinking about something else, just letting your mind drift away. Describing how you do them would probably qualify as the most monumentally boring part of any conversation.

There’s no such concept as monumentally boring when I do anything. With multiple sclerosis, if a task is not difficult to impossible, it is painful. If it doesn’t hurt now, I’m walking a razor’s edge on further injury to myself, someone else, or causing a whole crap load of damage.

Nevertheless, I continue to live. Some days, I even thrive. Like the old saying goes: Never Stop… Never Quit…!

After bike MS this year, when I was sending out my fundraising after action report emails, a longtime friend offered one of the greatest compliments. “I don’t know how you do it, KB.”

I get that on occasion. Sometimes, it’s a compliment (“I don’t know how you do it! That’s awesome!”). Other times, it’s a question (“I don’t know how you do it. Can you show me?”).

Living with a disability is a constant game of trying to trick the system to give me a bit of advantage. Take some time to share a few of my favorites with you. Helpful hints, useful gadgets, crafty tricks, they’ll come in all shapes and sizes. Whether obvious or crafty, these are the things that help me make it through the day with a smile on my face (as opposed to a frustrated, injured scowl).

I will write up a little blog post like this and recorded video to demonstrate.

Questions about something you want me to discuss? Recommendations or ideas for a new post? Drop me a DM on my social media or leave a comment.

These are things that help me live and get through this so I can celebrate the miracle of countless tomorrows. I want you to be there with me as well. We are in this fight together!

Because it is a fight.

The fight is not over and it won’t be over until a cure is found.

It will never stop…nor will we

It will never quit…nor will we

This is why we fight!

 

Never Stop… Never Quit…®

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